Tethered spinal cord – also known as TC – occurs when the spinal cord has unusual attachments to the spinal column that limit its movements. Spinal cord tethering is a developmental abnormality, meaning that it is present before birth. What causes a tethered spinal cord? What causes a tethered spinal cord? For this procedure, the patient is placed under general anesthesia. For this, the neurosurgeon will recommend a procedure called as laminectomy. It is usually apparent at birth by an abnormal tuft of hair or a small dimple at the site of the spinal malformation. Surgery can help relieve symptoms and future complication, but it cannot correct neurological damage that has already occurred, meaning that early treatment is recommended. The strain on the spinal cord would increase motor and sensory problems, as well as other symptoms. This field is for validation purposes and should be left unchanged. Tethered cord Syndrome The abnormal stretching puts tension on the spinal cord and nerves, this causes problems with the messages, getting to and from the legs, feet, toes, bladder, bowel and can cause some problems with sexual function. While your family is with us, they will receive expert care, excellent communication, and genuine compassion. When the spinal cord is fixed to the spinal canal, it causes the cord to stretch like a rubber band, causing pain and potential damage to the spinal nerves as the child grows. While the condition is typically progressive, it’s treatable when diagnosed and addressed early. For this procedure, the patient is placed under general anesthesia. INTRODUCTION: This study aims to evaluate diagnosis and treatment of tethered spinal cord (TSC) in anorectal malformation (ARM) patients. When the spinal cord attaches to tissue around the base of the spine, it can’t move freely within the spinal canal. Our dedicated team uses advanced technology to accurately diagnose and treat neurological diseases and conditions impacting babies and children. A tethered spinal cord happens when the spinal cord is fixed to the spinal canal, instead of floating free as it normally does. What is Tethered Cord? Intraoperative neuromonitoring is utilized during surgery to closely monitor the nerves and muscles. Tethered spinal cord treatment. The AANS does not endorse any treatments, procedures, products or physicians referenced in these patient fact sheets. Surgical untethering is generally performed when symptoms are present. Neuromonitoring Our neurosurgeons use advanced neuromonitoring during surgery. When the spinal cord attaches to tissue around the base of the spine, it can’t move freely within the spinal canal. Tethered Spinal Cord Treatment If left untreated, a tethered spinal cord can cause serious damage to the spinal nerves as a child grows. Baltimore. The pictures may show where your spinal cord is tethered. Tethered Spinal Cord Definition Tethered Spinal Cord is an uncommon neurological disorder. The dura is then opened, and the spinal cord and myelomeningocele are gently dissected away from the scarred attachments to the surrounding dura. Children who have a tethered cord but no symptoms should have surgery as soon as symptoms appear, so parents and doctors should closely monitor these children. In most cases, however, surgery is recommended to free the tethered cord. Adult Tethered Cord is characterized by a spinal cord that is located at an abnormally low position within the spinal canal. In the event of an emergency, call 911 or go to the nearest Emergency Room. As a child with tethered spinal cord syndrome grows, their spinal cord … Up and Down arrows will open main level menus and toggle through sub tier links. Spina bifida is typically diagnosed by a blood test or ultrasound during pregnancy. This is called “detethering”. Herniated Disc Neck Sprains and Strains Scoliosis. This syndrome is closely associated with spina bifida. The combined complication rate of this surgery is usually 1-2%. a blanket term that doctors apply to a variety of different conditions. Doctors also monitor children who have had surgery because a small percentage of children who have surgery to untether a cord require a second surgery when the cord tethers again. Other symptoms may … Some symptoms of tethered spinal cord include hairy patches, dimples, lesions, or fatty tumors on your child’s lower back. Enter and space open menus and escape closes them as well. We free the spinal cord, relieving pain and other symptoms. Tethered Cord Syndrome - Symptoms, Surgery, Treatment, Causes In adults, if the only abnormality is a thickened, shortened filum, then a limited lumbosacral laminectomy may suffice, with division of the filum once identified. Treatment for a tethered spinal cord usually is surgery to free the spinal cord. For many children, surgery to “untether” the spinal cord is the only treatment for tethered spinal cord. © 2021 American Association of Neurological Surgeons. In this procedure, some or all of a vertebra in the spinal column is removed, reducing the strain on the spinal cord and in effect shortening a patient’s height. Some symptoms of tethered spinal cord include hairy patches, dimples, lesions, or fatty tumors on your child’s lower back. As a child continues to grow, the spinal cord can become stretched, causing damage and interfering with the blood supply to the spinal cord. When treated early on, children with a tethered spinal cord have a normal life expectancy and development. Tethered cord syndrome is a stretch-induced functional disorder associated with the fixation (tethering) effect of inelastic tissue on the caudal spinal cord, limiting its movement. Do not enter the MRI room with anything metal. This procedure offers a unique benefit in that the spinal cord remains fixated to the spine, preventing retethering and spinal cord injury as possible surgical complications. Re-Operation for Tethered Cord A follow-up MRI is usually performed sometime after surgery. The pictures may also show a fatty mass or problem with how the bones in your spine are formed. A CT scan or ultrasound may also be used. The good news is that tethered spinal cord is a very treatable condition, especially when diagnosed and treated early. In some cases, symptoms may be present at birth (congenital), while others may not experience symptoms until later in adulthood.Features of the condition may include foot and spinal abnormalities; … Tethered Spinal Cord Treatment For children, early surgery is needed to avoid further damage especially neurologically. This causes the spinal cord to stretch like a rubber band as the spine grows, which can result in pain and nerve damage. If surgery is needed, it will be conducted based on the needs of the individual. Untethering (tethered cord release) is the gold standard treatment for TCS. Learn more about the NREF and make a donation today. After some time, follow-up with the neurosurgeon may be on an as needed basis or if symptoms return. However, its complexity and limited “track record” presently keeps vertebral osteotomies reserved as an option for patients who have failed in preventing retethering after detethering procedure(s). Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Tethered cord syndrome needs to be addressed and treated as soon as possible to avoid future complications from the condition. It is closely associated with spina bifida. Omar Zalatimo, MD MPH MHA FAANS This information is provided as an educational service and is not intended to serve as medical advice. Tethered cord syndrome tends to be a progressive disorder, and can remain undiagnosed until adulthood. Tethered spinal cord release is a fairly routine surgical procedure used to treat a tethered cord. Tethered spinal cord syndrome is a neurologic disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. It may also be caused by dermal sinus tract, diastematomyelia, lipoma, or a tumor. Many children require only one untethering procedure. Many people with spina bifida have normal intelligence and lead active lives. In adults, surgery to free (detether) the spinal cord can reduce the size and further development of cysts in the cord and may restore some function or alleviate other symptoms. There are several types of surgery, depending on the cause of the tethering and how much tissue is affected. Director, Functional Neurosurgery What are the treatment options for tethered spinal cord? We free the spinal cord, relieving pain and other symptoms. The lower tip of the spinal cord is normally located opposite the disc between the first and second lumbar vertebrae in the upper part of the lower back. The pictures may also show a fatty mass or problem with how the bones in your spine are formed. If surgery is not advisable, spinal cord nerve roots may be cut to relieve pain. Releasing the spinal cord also prevents nerve damage and spinal cord stretching. A child may also experience loss of bladder control and frequent bladder infections. Some patients may benefit from surgeries, medications, physical therapies, and assistive devices. A tethered spinal cord can develop either in utero or after birth. Recovery of lost muscle and bladder function depends upon the degree and length of preoperative implications. In some cases, a spinal fusion may be performed to create a solid union between two or more vertebrae. There are two types of tethered spinal cord release surgery. All Rights Reserved, background-image - a woman looking at a screen, Neurosurgery Research & Education Foundation, Dermal sinus tract (a rare congenital deformity), Thickened/tight filum terminale (a delicate filament near the tailbone), Fatty tumor or deep dimple on the lower back, Back pain, worsened by activity and relieved with rest, Progressive or repeated muscle contractions. Neurology, Neurosurgery, Spine Care | UTHealth Neurosciences, The University of Texas Health Science Center at Houston (UTHealth). Our neurologists work with the skilled pediatric team in our neurosurgery program to coordinate your child’s care. The spinal cord includes the bundle of nerves that controls leg movement and sensation as well as bladder function. Early surgery is recommended to prevent deterioration of nerve function. The best way to treat Tethered Spinal Cord or Tethering of Spinal Cord is to correct it surgically. Treatment of a tethered cord syndrome does require follow-up with the treating neurosurgeon and typically with physical therapy/ occupational therapy. Tethered cord syndrome occurs when tissue attachments limit the movement of the spinal cord within the spinal column. Attachments may occur congenitally at the base of the spinal cord (conus medullaris) or they may develop near the site of an injury to the spinal cord. Tethered spinal cord syndrome is a progressive neurological disorder resulting from abnormal attachment of the neural tube during fetal development. Treatment of a tethered spinal cord depends on your symptoms. We work in multidisciplinary teams of specialists and pediatric neurosurgeons who share insights, leading to better treatment decision-making and outcomes, as well as lower costs and time savings. Tethered spinal cord is common in children with spina bifida, but it also occurs in children who don’t have this condition. The neurosurgeons at The Spine Hospital at The Neurological Institute of New York believe that surgery When a child is diagnosed with a tethered cord, surgery is the most common treatment. Tethered spinal cords are a group of complicated developmental malformations of the spinal cord. Surgery is the main treatment for tethered spinal cords. Tab will move on to the next part of the site rather than go through menu items. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the In such cases, the strain on the spinal cord increases, leading to increasing sensory and motor problems, as well as loss of bladder and bowel control. There is some overlapping of the naming of these conditions and some of them are cases of closed spina bifida. A child may have back pain, leg pain, or leg numbness. Surgery is the main treatment for tethered spinal cords. A myelogram, which is an X-ray of the spinal cord with an injected dye, will help show pressure on the spinal cord or nerves. Treatment for tethered spinal cord typically involves surgery. Spina bifida is a birth defect that occurs when the neural tube doesn’t close all the way in the first month of pregnancy, resulting in damage to the surrounding spinal cord and nerves. This procedure may assist in strengthening and stabilizing the spine and may help to relieve severe and chronic neck pain. Observation and range of motion exercises may prove beneficial enough to outweigh the benefits and risks of surgery. To ask us a question, schedule an appointment, or learn more about us, please call (713) 486-8000, or click below to send us a message. Releasing the spinal cord also prevents nerve damage and spinal cord stretching. During development of the spinal cord, tissue and fat, or other body elements that do not belong near the spinal cord can become attached to the spinal cord. The child usually can resume normal activities within a few weeks. This article covers the basis of tethered cord syndrome as a stretch-induced spinal cord disorder, including pathophysiology, signs and symptoms, imaging diagnosis, indication for surgical treatment, and surgical procedures. Tethered spinal cord syndrome is a disorder that occurs when the spinal cord becomes attached to the tissues surrounding the spine. LifeBridge Health Tethered Spinal Cord Diagnosis Once the condition is suspected an MRI is performed to confirm diagnosis. Although the skin is separated and closed at birth, the spinal cord stays in the same location after the closure. Tethered cord syndrome is a rare neurological condition. The most common treatment for tethered spinal cord is a lumbar laminectomy to release the tethered cord. These attachments cause an abnormal stretching of the spinal cord. Left and right arrows move across top level links and expand / close menus in sub levels. An MRI or CT scan may be used to check your spinal column. The neurological surgeon makes an incision in the lower back to expose the site where the spinal cord is pinned, then frees it by releasing the stuck portion of the cord. For more than 30 years, the NREF has funded research and training to improve treatments and care for conditions like tethered spinal cord syndrome.Your contribution can make a difference. The position in which it comes to rest in an adult (L1 or L2) is caused by the growth of the individual. The pictures may show where your spinal cord is tethered. In this procedure, the surgeon will remove some part of the bones in the spine in order to reach the spinal cord and the nerve roots. The higher the malformation is on the back, the greater the amount of damage. The neurological surgeon makes an incision in the lower back to expose the site where the spinal cord is pinned, then frees it by releasing the stuck portion of the cord. An MRI scan, which offers a closer look at soft tissues, can usually determine if the issue is an abnormal placement of the spinal cord rather than nerve compression. Anyone seeking specific neurosurgical advice or assistance should consult his or her neurosurgeon, or locate one in your area through the AANS’ Find a Board-certified Neurosurgeon” online tool. The severity of the condition and the associated signs and symptoms vary from person to person. In patients with a lipomyelomeningocele, the spinal cord will have fat at the lower tip, and this fat may connect to the fat that overlies the thecal sac (a fluid filled sac that the spinal cord “floats” within) that may also lead to thethering. It is caused by a problem with the normal spinal cord formation, such that the spinal cord does not separate from the nearby muscle, bone, fat and skin in the usual fashion. It is estimated that 20-50% of children with spina bifida defects that are repaired shortly after birth will require surgery at some point to untether the spinal cord. The most common treatment for tethered spinal cord is a lumbar laminectomy to release the tethered cord. MATERIAL AND METHODS: A retrospective case study was performed on patients with an ARM born between 2004 and 2011 and treated at the Erasmus MC-Sophia Children's Hospital. These are benign conditions, but as with the spina bifida children, can cause terrible consequences if not treated. This situation may require additional surgery. Once the myelomeningocele is freed from all scarred attachments, the dura and the wound are closed. You can expect the surgery to take three to six hours. Common related conditions. If a tethered cord is suspected, your doctor will perform an MRI to get images of the spinal cord, nerve roots, and surrounding areas. Complications include infection, bleeding, and damage to the spinal cord or myelomeningocele, which may result in decreased muscle strength or bladder or bowel function. Contrast liquid may be used to help your spinal cord show up better in the pictures. ... By the time the child's first symptoms are noticed, non-surgical treatment for a tethered cord is usually not effective. The surgery involves opening the scar from the prior closure down to the covering (dura) over the myelomeningocele. Surgery for Tethered Cord. In some cases, it may be the result of improper growth of the neural tube during fetal development, which is closely linked to spina bifida. Anomalies that cause mechanical spinal cord tethering are listed, and the s … Spinal cord tethering is a developmental abnormality, meaning that it is present before birth. The second option, a spinal shortening surgery, is used to avoid disturbing scar tissue or the location where the spinal cord is tethered. When surgery is not advisable, spinal cord nerve roots may be cut to relieve pain. In some mild cases of tethered cord, physical therapy may ease symptoms. There are two types of tethered spinal cord release surgery. However, untethering carries risks of spinal cord injury and postoperative retethering 1) Intraoperative MEP improvement occurs in about 50 % of the patients following successful untethering. Signs of a tethered spinal cord. Untethering is generally performed only if clinical signs or symptoms of deterioration are observed. Other symptoms may include tremors, scoliosis, and spine tenderness. Tethered cord syndrome treatment Tethered cord can cause neurological, orthopaedic and sphincteric problems in children and detethering surgery may prevent or reverse these problems. The responses to treatment for tethered cord syndrome by repairing myelomeningocele or removal of scarring formation, varies from one person to another. Complications include infection, bleeding, and damage to the spinal cord, which may result in paralysis or loss of bowel or bladder function. Are there natural treatment (s) that may improve the quality of life of people with Tethered Spinal Cord Syndrome? Tethered spinal cord syndrome is a progressive neurological disorder resulting from abnormal attachment of the neural tube during fetal development. The skin may be discolored in that area. Sometimes a small portion of the bony vertebrae (laminae) are removed to obtain better exposure or to decompress the spinal cord. After the repair, the spinal cord may become "retethered" and additional surgery may be recommended. As a result, the movements of the spinal cord are limited. Throughout treatment, we will work closely with the doctor who referred your family to ensure a smooth transition back to your child’s regular care. Tethered cord conditions may cause syrinxes, or fluid-filled cysts, elsewhere in the spinal cord. Spinal trauma or surgery can also result in a tethered spinal cord. At UTHealth Neurosciences, we offer patients access to specialized neurological care at clinics across the greater Houston area. Here you can see if there is any natural remedy and/or treatment that can help people with Tethered Spinal Cord Syndrome. Treatment. For patients with mild or minor symptoms, no surgery may be recommended. The skin may be discolored in that area. A child may have back pain, leg pain, or leg numbness. An MRI or CT scan may be used to check your spinal column. On rare occasions, years after the original surgery, a re-tether may develop for certain types of tethered cords causing radiating leg pain, persistent back pain or bladder problems. TC is usually a congenital (present at birth) condition. Tethered spinal cord release is a fairly routine surgical procedure used to treat a tethered cord. However, because symptoms of tethering can occur during periods of growth, 10-20% of children with this syndrome require repeated surgery. Tethered spinal cord syndrome is a congenital abnormality that results in the lower end of the spinal cord becoming fixed or attached in place, which causes intermittent pulling or stretching of the spinal cord. It is caused by a problem with the normal spinal cord formation, such that the spinal cord does not separate from the nearby muscle, bone, fat and skin in the usual fashion. The pressure exerted by a syrinx can also damage the spinal cord. The most common surgery for tethered cord involves cutting the anchoring tissue on the bottom called the filum terminale. A magnetic resonance imaging (MRI) scan of the spine can provide a definitive diagnosis. A tethered spinal cord is a serious medical condition that primarily impacts children. If a tethered cord is suspected, one or more tests may be necessary to confirm the diagnosis. Our neurologists work with the skilled pediatric team in our neurosurgery program to coordinate your child’s care. Other treatment is symptomatic and supportive. In people with spina bifida (myelomeningocele), the spinal cord fails to separate from the skin of the back during development, preventing the spinal cord from ascending normally; therefore, the spinal cord is low-lying, or tethered. While it is rare, some patients may go undiagnosed until adulthood. It’s estimated that 20 to 50% of spina bifida patients will require surgery to untether their spinal cord. Your child will remain in the hospital under supervision for five to seven days, depending on their recovery. Surgery is the most common treatment to “untether” the spinal cord from the spinal tissue. The spinal cord typically divides into small nerve roots at the L2 vertebral body. Do not enter the MRI room with anything metal. Contrast liquid may be used to help your spinal cord show up better in the pictures. For this reason it is a good idea to scan the entire spinal cord, and potentially the brain, prior to treatment. Tethered spinal cord treatment. In addition to myelomeningocele and lipomyelomeningocele discussed above, the following are other causes of tethered cord that vary in severity of symptoms and treatment: The symptoms listed below are some of the ways in which tethered spinal cord syndrome may be exhibited in children: Although it is rare, a patient with tethered spinal cord can continue undiagnosed into adulthood. The site navigation utilizes arrow, enter, escape, and space bar key commands. Children need regular follow-up care, as retethering can happen during periods of rapid growth. Doctors aren’t sure why this occurs but have determined that taking folic acid during early pregnancy reduces instances significantly.

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